NEO-WKZ

Neonatologie WKZ-UMCU...

Description

Baseline standard clinical pre-perinatal and post-natal characteristics, maternal and neonatal risk factors, morbidities and the most common complications during the neonatal period, longitudinal follow up,...

General Design

Type
Biobank, Clinical trial, Cohort study, Registry
Cohort type
Clinical cohort, Population cohort, Case-control
Data collection type
Retrospective, Prospective
Design
Longitudinal
Design description
Standard care and clinical trial data collected in the neonatology and perinatology with follow up data
Start/End data collection
2006 (ongoing)
Design paper
Neurodevelopmental Outcomes After Neonatal Surgery for Major Noncardiac Anomalies
PID
https://doi.org/10.71739/y9ww-m313

Population

Countries
Netherlands (the)
Number of participants
2000
Population age groups
Prenatal, Infant (0-23 months), Child (2-12 years)
Main medical condition
  • VII Diseases of the eye and adnexa
  • IX Diseases of the circulatory system
  • XV Pregnancy, childbirth and the puerperium
  • XVI Certain conditions originating in the perinatal period
  • XVII Congenital malformations, deformations and chromosomal abnormalities
  • XVIII Symptoms, signs and abnormal clinical and laboratory findings, not elsewhere classified
  • ORPHAcodes
Inclusion criteria
  • Age group inclusion criterion
  • Defined population inclusion criterion

Organisations

Lead organisations
Additional organisations

Contributors

Available Data & Samples

Data categories

  • Survey data
  • Imaging data
  • Medical records
  • Physiological/Biochemical measurements

Areas of information

  • Socio-demographic and economic characteristics
  • Symptoms and signs
  • Medication and supplements
  • Non-pharmacological interventions
  • Health and community care services utilization
  • Death
  • Physical measures and assessments
  • Cognition, personality and psychological measures and assessments
  • Preschool, school and work life
  • Social environment and relationships
  • Administrative information

Subpopulations

List of subpopulations for this resource...

No results for current selection

Collection events

List of collection events defined for this resource...

No results for current selection

Networks

Part of networks...

  • Welkom bij Health Data Space Utrecht, het portaal dat de regio Utrecht verbindt door onderzoekers en professionals samen te brengen om kennis en data te delen....

Publications

Access conditions

An official data request, upond ethical approval, must be submitted to the PI for consideration...

Data access conditions
  • health or medical or biomedical research
  • disease specific research
Data use conditions
  • research specific restrictions
  • collaboration required
  • ethics approval required
  • project specific restriction
  • institution specific restriction
Data access fee
false
Release type
Periodically
Release description
bi-annually the data is enriched with more inclusions and follow up
Prelinked
false